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Friday, July 13, 2007

Well thats over with

For all of you wondering how Kenedey's "procedure" went, it went well. Of course there is a story to go along with it, seems these days nothing goes quite as planned! We go to U of M Mott's Children's Hospital and everything was moving along as planned... until Dr. Adams, (Kenedey's Rheumatologist) came to look at her joints before going into the Operating Room. She always uses a marker on Kenedey's knees to mark which knee they doing. Well, im standing there talking to the anesthesiologist and she marks Kenedey Left knee. I said, "wait, thats not the correct knee." She looks at me with this surprised expression and says... "well... uh... now were doing both knees." Kenedey has NEVER had her left knee flare before. Well apparently she know has BOTH knees affected, her left ankle, and her thumbs... who knows what else could pop up now... nothing would surprise me at this point.

So Kenedey starts crying and gets all upset because of course we have her all prepared for the one knee and shes all fine with that... for goodness sake shes done this four times already. Well that "extra knee" bonus for today just threw her off. I can't say I blame her. I wish I could have prepared her, but really there was no way for us to know it needed to be done too. So the "surgery" went all fine and dandy. It took a little longer than it usually does, they were exceptionally busy today. She was pretty upset still when she came out of post-op they said she woke up shaking... probably just nerves. She can get herself all worked up pretty quickly. They left her IV in her hand for awhile just to be sure she didn't need anything for nausea or anything... well good thing they did because her left knee was hurting her. They gave her some Tylenol and also some Morphine in her IV. That calmed everything down quickly. When the nurse came over with the Morphine it was in a syringe with a needle and Kenedey started crying and was like I dont like shots. But then she explained she would put it in her IV... that stopped the hysterics! LOL The child DISPISES shots!

Dr. Adams is going to have her start taking Methotrexate (MTX for short) again which is a weekly injection. She has done it before and responded extremely well and that's probaby what sent her into remission last time... 2 years ago. She considered putting her on Plaquenil or Azulfasalazine (sp?) but said we would see how she did with just the MTX. She is stopping the Celebrex that she is currently on and putting her back on Sulindac again which is a non steroidal anti-infammatory. If you pray... please do so for Kenedey, she could really use some extra prayers to get through this tough time. We are doing our best to keep our heads up, however, at times this all feels very discouraging. Thank God she is a tough little booger! We are starting back to Physical Therapy as soon as Dr. Adams office gets it set up. That part is always a challenge because it's so many trips to Jackson and Ken always ends up hating it because it hurts and they make her work the joints that she doesn't want to. But here we go!

So enough about that... thank you again to all of you for your concern and thoughts about Kenedey's JRA flare and her procedure. We sincerely appreciate it.

On a lighter note. We stopped on our way home and had some lunch at Chili's. It was excellent. We don't go out to eat much (budget crunch) so it was a treat. We enjoyed it. Then Jason and Kenedey really wanted to stop at Petco (pet store). They went in there.... Kenedey went in the cart! I went over to Old Navy... they are having some serious sales. I think moving out summer stuff for back to school stuff probably. I got Ken a pair of jeans for $3.99 and I think 4 shirts, a pair of shorts and Carson a pair of jammies, and 2 shirts and I walked out spending $21.36. Good deal don't ya think. I LOVE that store when they have deal like that! You all know im a sucker for a good deal.

We did some baking tonight, we made... pumpkin mini muffins, lemon poppy seed muffins, snickerdoodle cookies, and chocolate chip cookies. We are doing the garage sale at Jessica's tomorrow morning and we are going to let the kids have a lemonade stand and sell the cookies and muffins. Should be fun! I guess she sold quite a bit of my stuff today about 20 bucks worth not bad considering I didn't take over all that much stuff. Got rid of ALL of Carson's baby bibs, there were about 59 of them! LOL Ken put a bunch of VHS movies in that she didn't want anymore and those are about gone too Jess said. YEAH! Well, thats about it for now! Everyone have a great weekend. :-)

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